This is a live document published since 2020 that I continue to modify. When you use this document, please explicitly provide credits, the minimal of which is: ‘Accessing Kai, Kai Syng Tan 2024′.

INTRODUCTION: I specialise in developing creative interdisciplinary interventions to productively antagonise oppressive structures that are taken to be the ‘norm’. My innovative approach is likely not un-related to my neurodivergence. Divergent-thinking, creative problem-solving, novelty-seeking and risk-taking (e.g. Lesch 2018, Cancer et al 2016) are my nature and design (as an artist by trade), matching traits now understood as essential in effective leadership (e.g. Frost 2016, Aylesworth & Cleary 2020), and underpin my work, including founding the global 435-member Neurodiversity In/And Creative Research Network.

WHEN WORK DOES NOT WORK: In an ableist world that prioritises normativity — including medical approaches to body-minds — my differences are labelled Attention Deficit Hyperactivity Disorder (ADHD), autism, dyslexia and dyspraxia (diagnoses: 2015, 2018, 2023). Mainstream ways of work often creates long-term cognitive, communication and psychosomatic (including sensory) challenges for me, which UK’s Equality Act define as disabilities requiring workplace adjustments. Under the Act (2010), employers ‘must make reasonable adjustments to make sure workers with disabilities, or physical or mental health conditions, are not substantially disadvantaged when doing their jobs’.  I love work, and love working with students, artists, scientists, non-humans etc. However, I refuse to and will walk away from work in harmful and/or inequitable conditions (see here for equity versus equality). How I process and produce information, and communicate in both written and verbal modes, as well as how I organise and relate to other body-minds, differ to that of those who are ‘neurotypical’, as well as to others who are neurodivergent. I require environmental customisation as well as specialist technological and human support. I can map out creative visions for the future in 90 seconds, but can take 40% more time than many people for certain linear/logocentric/fiddly tasks. It’s 3 hours to write 50 words/ characters on a form as opposed to 3 minutes to produce a lyrical voiceover for a film. As a visual thinker and maker, I make sense of the world (and make my world) visually, plus viscerally, bodily and mind-fully.

ACCESSING KAI: This page is my access rider lists key provisions that individuals and institutions should follow, pay for and implement in order to gain access to me. I will not work if these terms aren’t met. We’ll begin with a gallery of existing examples of good practices. Scroll to the bottom for the tab (M) ‘LEARN MORE’ to, well, learn more about the legal and practical aspects of ensuring that workplaces are not dangerous or harmful (and might even enable human flourishing?). Read story version here about my neurodivergence (May 2022 interview). More than one in seven in the UK population (and one in three in art and design) have cognitive and communication processes that differ from the ‘norm’. The assumption of neurotypicality and other ‘normative’ traits as ‘default’ is un-reasonable. Click here for examples of bad practices – make sure you do not end up there. Structural changes to enable parity at work is a basic human right — not a ‘good to have’, or reliant on the goodwill (sic) of enlightened (sic) individuals, and not the onus/job of the minoritised individual. TLDR – scroll right down for a 24-second video clip by comedian Sinbad (2015) that sums it all up.

CREDITS: Several neurodivergent and non-neurodivergent individuals and organisations have told me how this page has been a ‘revelation’, and that it is giving people and organisations more permission to draft their own statements and policies. When you use my contents, format etc, please explicitly provide credits. Under Attribution-NonCommercial-ShareAlike 4.0 International (CC BY-NC-SA 4.0), you can remix, adapt, and build upon your work non-commercially, credit me and license your new creations under the identical terms. The minimal credit is: ‘Accessing Kai, Kai Syng Tan 2024′ (provide full address and/or use hyperlink).

A) WEBSITES & SMALL PRINTS
  • Avoid: Forms, word/character counts, Gannt charts, lined Excel, long prose, long paragraphs, large streams/seas/oceans of text, especially when communicating complex information with multiple steps.
  • Use:
    • Flow charts, infographics, tables
    • Bullet points, highlights, colour-coding, bolding of words/phrases
    • Distinct headings, chunking
    • Summaries, maps, navigation menus
    • Accordions (like this page) that enable expansion or contraction of content
    • Colours, font size/type difference, to make sections, structures and clustering clear
    • Modular chunks, enough differentiation of sections
    • Functions to enable customisation: Changing of font size, contrast, brightness
    • Text in chunks in ‘landscape’ instead of vertical/linear mode
    • Diagrams and mappings in landscape formats. One page one key theme please. See gallery above.
    • Also see here and here for further examples of good practice which works well for visual thinkers and those who are dyslexic (literally ‘word-blind). Edge Fund’s website is shockingly simple, clear yet (or thus) fierce
  • Don’t: Processes that are fiddly, opaque, complex, long-drawn, confusing, convoluted, protracted, abstract are often so by design and part of a state/institution’s mechanism of oppression. Think payment or complaint and HR procedures, and more. Kafkaesque plot twist: Bodies that are claim to be centred on equity, diversity and inclusion (EDI), and/or meant to provide support for the disadvantaged, disabled and more, can often not only duplicate but amplify ableist, racist, classist barriers. Disability support (sic) systems, job seekers processes and more can double down to be doubly, triply punitive, as they know the right buttons to push and ways to play the system.
  • Do: If you don’t want to be part of the problem, and want to help neutralise (or even improve) harmful bureaucratic processes within a large, abstract, complex machinery involving multiple steps, tai-chis around different people, desks, offices, departments and sub-systems, create at least one, or all of the following mechanisms to clearly map the what, how, whom with, when and why-s:  
    • Interactive, pictorial flowchart to allow understanding of workflows and big picture as well as detailed steps (‘Are you an international student? If yes, then click this, and if not, click that etc. If this, then that; if that, then possibly that and that etc)
    • Video simulation of walk- or run-through: what will happen exactly when and/or by when, whom is in charge, whom else if that person is on leave and/or leaves the role?
    • A person (flesh and blood and sweat, not bot; responsive, and with a name) whose task it is to actually hand-hold and walk people through every step of process until the end (completion of task, receiving of full payment etc etc). Make sure whom else is in charge if this person is on leave and/or leaves the role is clear.
  • Do: Respond to specific questions with specific replies.
  • Don’t: Respond to question by sending links (that contains more links or long paragraphs) and say ‘everything is there’. They might be – that’s the problem. Show, tell, point to me where what I am asking is. Annotate the document with a digital highlighter or pull out the 3 points that will answer my question, not make me read 300,000,000,000 lines/pages of prose. 
  • Don’t ever say: ‘This is how it is’, ‘this is the way things are’ and/or similar, and not try — unless you’re actively and willingly part of the problem, and if so I won’t waste any more of my time with you. ‘It is only a couple of sentences’. Ever. English is my first language (thanks to imperialism), but linear, pedantic, logocentric ossified language and thinking is Greek to me (or Chinese??). I am physically, viscerally and mentally allergic to bureaucracy (hence the voluntary exile from a shiny tropical paradise with taut hardliner systems which William Gibson calls ‘Disneyland with Death Penalty’). Retrieving information into one document, structuring and being succinct, and ensuring writing is of a required length, is challenging for people who don’t think in linear, clearly boxed-up ways. Language, words and ideas arranged in linear sequencing in tightly-packed prose that require careful reading and writing (examples: dense academic texts, policy documents) are often not clarifying aids or tools. I require 40% more time than many neurotypical people to accomplish tasks related to certain types of reading, writing, form-filling, and more. I can take 3 hours to write 300 words, 2 working days to read a 4-page document. Common to those who are dyslexic (meaning ‘word-blind’), I am a visual thinker and I need to ‘see’ to think. Typical steps include:
    • Printing out text;
    • Reading multiple times by annotating using array of stationery (highlighter to colour-code, use of sticky notes to grasp structure of text/book etc);
    • Dictating (speech to text) on Scrivener (software allowing modular sequencing);
    • Editing transcribed text (since AI is still racist and does not recognise minoritised accents);
    • Cross-referencing other documents on other formats such as assessment criteria matrix, summaries, each of which also require printing out and the repeat of above steps;
    • Re-arranging chunks of texts to normative order;
    • Translating and re-formatting texts from Scrivener to those used by the institution eg Microsoft Office word docx.
B) BOOKINGS & ENGAGEMENT INCLUDING PRESS/MEDIA
  • To book me to deliver a keynote lecture, lead a masterclass and more, email >3 months in advance before the date of the event/engagement. To request for expert review of research proposals, grants or promotion applications and more, >14 working days will be required. To ask me to chair something and/or participate in a meeting, send materials >14 working days prior. I will not read anything sent to me just before or during.
  • I do not work for free. Never ask me to ask my minoritised peers/students to work for free either. I will make the judgement if the nature of engagement constitutes my academic and/or creative citizenship/service, and/or if I wish to take on the task pro bono. Otherwise, I will be as a freelance practitioner. My rates as a freelance practitioner vary, depending on the task (artist, consultant, chair, keynote speaker, masterclass lead etc) and your EDI record action and policy. See here for more details.
  • My workload including my voluntary and pro bono work, which you can read up on herehere and here, with 15+ groups, means that I will reject most pro bono requests this year. Your money will travel. I make regular donations to individuals and non-profit organisations, including Doctors of the World (monthly), West End Refugees Services, Wikipedia, Guardian, Pankhurst Centre, MS Trust, Migrant Journal, Headway East London, Artists for Palestine, United Nations Relief Work Agency for Palestine Refugees in the Near East (UNRWA), United Palestinian Appeal, peers’ participation in marathons.
  • Exploratory chats‘ are 10-15 minutes, during when we discuss the details and parameters of how we can work together. You will pay for my double expresso with a splash of hot water too. Beyond 15 minutes, my consultancy rates apply. 
  • Media engagement and interviews for research projects and more will be conducted in person or via a Zoom call, for you to broadcast/edit/transcribe for printed media. Do not send questions beforehand. I will respond live. Prior to this, we will outline and agree upon the themes, parameters and set a time. Interviews requiring written responses will be refused. Materials will be reviewed and approved by me prior to public dissemination. 
  • Please, do your own homework, particularly if you/your event claims to be framed around EDI and/or if you claim to be an ’ally’. It is not my job to educate you unless you pay me to do so. Allies do not take/steal, but contribute labour and legwork which includes the inconvenient and the three D’s (dirty/dangerous/demeaning) that marginalised people face in everyday life.
  • I do not need ’exposure’ or ‘experience’. Please, don’t play the ‘vocation’ or goodwill card with minoritised people. Publishers, universities and organisations asking for over-work or free work claiming that because ‘no one is making a profit’ and are being exploitative because you are profiting from your product/programme/event. Minoritised groups are often working at a high cost (including health-wise) and are often making losses, in order to sacrifice other activities to contribute to your ‘intellectual’ /’cultural’ ‘exchange’ or ‘community engagement’ or ‘outreach’ (sic). Also stop describing marginalised people as ’emerging’. I look young because I moisturise. Stop infantalising, demonising, criminalising, stigmatising, exoticising people different to you.
  • Explicit and formal crediting for my contribution must be included. Pay in a timely fashion, or late payments will incur. Do not become and institution/individual that I blacklist – and there are several, including Russell Group organisations.   
  • Do not book me if you want to parade/use/make use of another non-white body-mind or name. Ask yourself: To what extent is your institution’s action (not just sweetly-worded ‘policy’ statements) anti-racist and your leadership non-white and/or disabled? Have you become ‘woke’ and ‘anti-racist’ because it is on trend (since circa 2020), while actively complicit with and actioning inequality and inequity for the years/centuries/millennial prior?
  • I will resign or withdraw participation/engagement/endorsement if your processes are not inclusive.
  • I have written and spoken extensively, such as here and here, about the magic + disparity of power dynamics that can exist when creative and/or neurodivergent people work with members of other species. Also read peer-reviewed article ‘I’m not being paid for this conversation’: Uncovering the challenges of artist–academic collaborations in the neoliberal institution’ (Pfoser and Jong 2019) here, points of which can apply to other situations beyond academia where issues of exploitation, instrumentalisation, objectification, appropriation and more can occur. 
  • Reviews, reports etc: I will provide feedback as a video or audio recording, on Teams or as a Quicktime movie, which you will transcribe. AI unfortunately still does not recognise/capture accents correctly so the transcribed text will require your labour of sifting it through and correcting the transcript. I can sense-check the final version. If this proposal does not work and you require a written review or report, I may reject the invitation.   
C) MEETINGS & NOTE-TAKING
  • Use bullet points, not prose, not storylines, not long paragraphs.
  • Be succinct. 1 point 1 bullet point. Use nouns, punctuations and notations. 
  • Keep your long story short, (bitter)sweet and sour, and save your (melo)drama to Netflix and chill.  Please, no long-winded narrative ‘plots’.
  • Colour code names of participants, and assign action points with same colour codes.   
  • Bad example: ‘X did this, to which Y responded that. After discussions with Q and P, this was decided, which requires Z to act by 01/01/2023’
  • Good example: ‘Z: Do this by 01/01/2023. References: X, Y, Q and P’.  
  • Even worse example: ‘Tom starts off by XX, but he goes on to clarify that, in order to yy, we must zz. Sally then responds by saying, yes ZZ is great. Subsequently, they changed their mind, and said that, given BB, we should do ZZQ. To follow up, Tom & Sally will watch YouTube videos to learn more about ZZ and Q by Tuesday’.  
  • Less worse example: ‘TOM: YY needs ZZ, not XX. Next bullet point: SALLY: Due to BB, ZZQ is better. Arrow sign: TOM+ SALLY (Deadline Tuesday 30 Sep 16:00): Watch Youtube video learning on ZZ & Q’
  • Assign bold deadlines to build in snafus.
D) EMAIL
  • Email is my primary mode of communication. 
  • Be brief and direct. Use bullet points and make bold for key information.
  • Explicitly state what is needed, by when, and how many documents need action, etc.
  • Avoid group emails, unless you’re explicitly highlighting my name and exact task required. If not, these emails will be treated as surplus or not important.
  • Indicate action required in the subject heading, e.g. ‘URGENT’, ‘PLEASE SIGN’, ‘RESPONSE REQUIRED BY X’.
  • Keep related correspondence under the same subject heading/thread
  • Respond to bulleted question in a different coloured font under each corresponding bullet point.  
  • Avoid referring to attachments and/or multiple sources – include summaries of key information in the body of the email. The more interfaces and softwares I need to open to access information, the more time will be required.
  • Provide hyperlinks to key resources.
  • Do copy in collaborators directly and/or relate message as required to others. I will also cc others into relevant correspondence, rather than repeating, summarising, and/or duplicating information, or explicitly identify tasks/actions required. 
  • Avoid long and long-drawn, back-and forth detailed discussions. Lay out the basics  and arrange for a short Zoom call.
  • I send emails (but not WhatsApp messages) at ‘odd’ hours/days, but I do not seek/expect responses in those odd hours.
  • Attachments that require my action (including reading) should use Arial or other sans serif fonts, size 11. 
  • Highlight within the attachment at the exact spot what I need to do and by when. 
  • Do not send the same message to multiple platforms (eg social media). Be patient. 
  • Re-send email if no responses are given in >14 working days.
E) ORGANISATIONAL & TIME MANAGEMENT

You will likely get the best version of Kai ‘live’, in a live meeting (including and not limited to: discussions, workshop, interviews etc), if the following points are observed: 

  • Meetings should be:
    • 20-45 minutes.Run to agreed duration. Point out when we are halfway through. Count down final 15, 10 and 5 minutes.Arranged >5 working days in advance for online (Zoom preferred) meetings, >7 working days for offline meetings in the city I am in (provide maps, clear directions, etc).
    • Additional notice required if preparation is needed, or if a different city (see tab entitled ‘TRAVEL’).
    • Accompanied by a bullet-pointed itinerary and schedule a ‘run through’ ahead of time.
    • Held from 13:00hrs GMT
    • Run to agreed intentions and parameters (duration, area of discussion, expectations etc).   
  • Avoid changes, especially last minute ones.
  • Any pre- or post-meeting ‘homework’ (particularly if involving reading, writing, collating, summarising and/or synthesising) must be costed and made clear.
  • Make deadlines clear. State exact date, day and time, using the 24-hour clock (eg 30/12/2022 Mon 23:59hrs). 
  • The more steps, platforms, softwares and devices involved, the more time will be required. 
  • When provisions are not in place, I have to create my own adjustments to manage sensory disturbances, avoid distractions, and accommodate hyper-focus. I can work in excess of 100 hours per week (over contracted hours), including evenings and weekends. The hours I work are not captured on the a typical workload model as how I work does not conform to normative approaches. Unhealthy, harmful work conditions are not just not ideal but not legal.
F) PRACTICAL, MATERIAL & TRAVEL 
  • WORKSPACES: 
    • Noise and smell should be avoided. Spaces must be silent. Chitchat, background noise, including voices, music, eating, hot food, etc are not conducive for work. 
    • Provide accessible space with adequate facilities. Large, clear desk space facing window or neutral wall, whiteboards and stationery are key. 
    • As a visual thinker, I require use an artillery of colour-coded stationery (files, folders, post-its, highlighters) equipment (printer, Apple MacBook Pro, iPad with pencil), furniture (book shelves, large desk, white board). 
    • If shared workspace, I will face away from other occupants to avoid distraction. 
    • Distance from crèches or areas accessed by teenagers, children and babies please. Sight of toddlers running around and the pitch of the sounds of/by children and babies, or the gloating noises by their parents must be avoided.
    • Non-humans (cats, large dogs, and large cats) warmly welcome  
  • TRAVEL
    • Seating: Aisle seats, no change/stopovers, quiet carriages, as close to the front of the vehicle, and forward facing seats, and to arrive >2 hours before the assignment please,  
    • Trips >2 hours: Requires overnight accommodation, and at least a full days’ fee, as well as per diem. Any long/fiddly journeys means that my entire day of work is gone, even if the actual activity is short.  Alternatively, the assignment should to be conducted online. 
    • Accommodation: Near venue of meeting with breakfast plus if possible, swimming pool (I swim daily), if not, gym.  Shared accommodation or accommodation with shared facilities, or in someone’s home (eg Bed and Breakfast) will be refused
  • WAYFINDING:
    • Give detailed, explicit directions.  
    • Provide links to detailed and accurate maps.
    • Point out unexpected road blockages, and if roads/streets have no signages (WHY NOT?) and more.
G) RELATIONAL/SOCIAL
  • Be explicit. When you think you are too direct, be even more direct. Don’t be polite (I’m not British), beat around the bush or play games.
  • I am a visual thinker and maker, and make (sense of) the world visually, plus viscerally, bodily and mind-fully. I don’t mind-read or read between the lines. I cannot see anything that is hidden, not explicitly raised, not visible. 
  • Ask targeted, not general, questions. Do not obfuscate.  
  • Make explicit what the nature, parameters and terms of engagement are from the beginning. If it is collaborative, dynamic and creative, make that clear. If you suddenly change goal posts, improvise new terms of engagement mid-way, I will walk away.
  • If you are the lucky few who have my phone number, do not ever cold call. Email/text to arrange a specific time to talk. Email or text to arrange a specific time to talk, and call at agreed time. You may WhatsApp short messages. 
  • I can socialise, but may avoid social situations, especially those in noisy and/or large group settings.
  • No chit chat, gossip, workplace politics, small talk, plot twists, human shenanigans, mudslinging, backstabbing etc etc. I’m not interested.
  • Long/free-flowing (chit) chats, unless we’ve agreed that the session is explicitly exploratory/discursive etc, will be shut down. 
  • Collaborators and participants should be aged between 20 – 120. No teenagers, children, babies. Those aged 120 and above will likely be welcome too. Animals, specifically octopusses, cats, large dogs and alpacas, are more than welcome.
  • Within a given activity/assignment/engagement, processing, recovery, detox and ‘down’ times are to be factored and costed in, with moments/minutes/hours/days/weeks with varying degrees of non-social, non-contact and non-communication.
  • Spontaneity can be welcome, but not when this impinge on my processing time and down time.
H) HUMAN ASSISTANCE

Technologies and environmental adjustments aside, I require human assistance to help me navigate normative systems.

  • The person should be patient and precise, calm and collected, adore paper work and the small print, and have a level of humour to work with an excitable interdisciplinary creative researcher (me).
  • Take a look at this advertisement (October 2023) that I have put out through my workplace, University of Southampton, for the role of a Coordinator.
  • The role is primarily funded by the UK Department of Work and Pensions’ Access to Work. As of August 2023, my university has agreed to co-fund for this role for up to an agreed percentage of the costs, even if the level of government support changes.
  • This is not a generic support worker role. Instead, the Coordinator must be familiar with academic and research environments, and especially research funding applications.
  • In a UK Higher Education institutional contexts, systems that I require support with include but are not limited to the (often paradoxically-named) following: Worktribe (to document projects including funding applications), Pure (research), Clarity (travel), MyEngagement (student registration), Aggresso (finance). More generally, MS Excel and MS Teams (and MS anything) are not accessible.
  • Given the unusual nature of such a role, I am writing about this as a chapter in A Handbook in Neurodiversity & Creative Research (Routledge 2024) with a former Coordinator to outline what/how/why and more of the role, so that other neurodivergent and/disabled people within and outside of academia can also find ways to implement such formal support within the workplace.
  • Essential questions:
    • Please describe a time when you supported a researcher and/or led your own research project at postgraduate or PhD level. (What were the processes that you led on? What was the most challenging aspect)?
    • Please describe how you have worked on a grant application (in research, arts and cultural, or general), either individually or as part of a team. (What was your role? What was the grant for and at what level (local funding body, national and/ or international)? How much was the grant applied for?
    • Please describe a time of working on (as active member of a team, or assistant, administrator or manager) a successful research or arts and cultural grant application in the last five years. (Please share contexts of the grant, what your specific contributions and tasks were, and other details of the award).
  • See the gallery below for a summary of the role, as shared on my Instagram @kaisyngtan
I) REFEREE AND SIMILAR ROLES

If you would like me to be your referee for job/grant applications, please:

  • let me know in advance what the contexts is. Tell me why you think I would be a suitable referee for you and/or this application. Do not add my name without asking me beforehand.
  • create a full draft for me to edit on. Include your responses to the following questions: Why this role? Why you? Why now?
  • do not make the request less than two weeks prior to the deadline.
  • make sure you get my name correct.
  • do not include my phone number, if you happen to have it. Email is my preferred mode of communication.
J) KAI
  • If you think I’m ‘brilliant’, ‘energetic’, etc, fully costing the items above is essential as part of (not despite of) the brilliance etc. Take the whole package — you can’t pick and mix that which are convenient for you. 
  • I am a bundle of joy.  People say that I am ‘intense’, ‘intimidating’, ‘too niche’, ‘too risky’, ‘too direct’, ‘fearless’. Other more florid descriptors have been used behind my back.
  • I often laugh, make jokes or say things that make you laugh but I am (often) dead serious.
  • If I offend you, it is (usually) not intended. If unscripted, I may use inaccurate terms or say things that are unintended. When I unintentionally offend, I do apologise.
  • I do have (some) manners. Being neurodivergent is not a free pass, but how incorrect, immoral and unethical is the assumption of neurotypicality? This is not about identity politics or culture wars, but structural inequality.
  • I’m impatient. I cannot sit still. I do not know when my neurodivergence begin or end, and when my impatience with the injustices around us begin/end. 
K) GUIDELINES FOR BETTER PRACTICES TOWARDS LOVE-LED SPACES

Click here to access the Neurodiversity In/& Creative Research Network LIVE Community Guidelines.

  • CITATION: Tan, Kai Syng. 2022. ‘Neurodiversity In/& Creative Research Network LIVE Community Guidelines’. https://docs.google.com/document/d/1xb6Krz576vcEOf8mdsdmfiLSgNmkcn3HWdYgbyEwX7c/edit?usp=sharing 
  • NETWORK: The Neurodiversity In/And Creative Research Network is a growing, global alliance of 440 neurodivergent innovators and allies. We encourage members’ contribution and feedback to help us to make our space more inclusive for all. Adhering to the community agreements is a collective responsibility and everyone is responsible for checking their own behaviour. The list is not exhaustive and the items are not in any particular order, and this document is live. We welcome your feedback to improve these guidelines and to make our community safer. Email Kai kai@kaisyngtan.com
  • FORMATS: The 1-page jpeg version is followed by the text version. Click here for single-page PDF version. Scroll to the end for community guidelines by other activist and artistic platforms that have inspired this.   
L) GUIDELINES FOR BETTER PRACTICES FOR IN-PERSON, ONLINE AND HYBRID SPACES

Here is an article What’s love got to do with neurodiversity and HE art and design? published on the Society for Research into Higher Education (SRHE) website that provides more context and practical advice through an illustrated case study, which was the loved-filled  Neurodiversity in the Arts Symposium directed by Dr Timothy Smith for which I was the keynote speaker.

  • Programming not to neo-liberalist but ‘crip time’ (Kafer 2013), enabling us to process our thoughts, with 30 minute breaks between sessions, and a 2-hour lunch break;
  • Employment of live professional CART (Communication Access Real-Time Translation) captioning – not the still racist AI captioning that does not grasp ‘non-standard’ accents (image 2, to the right);
  • Where divergent modes of being – including horizontally, in motion etc, not just seated or erect – are affirmed (image 2, foreground);
  • Inclusion of fidget toys in the goody bag (image 3);
  • Provision of quiet spaces – no, we’re not talking about a broom cupboard or first aid room doubling, but a (care-)fully decked out sensory rooms for group or solo use, with low lighting, different soft furnishings as well as more sensory objects for people to shut off, calm down and/or regroup (image 4);
  • Detailed maps, diagrams and instructions for ‘walking or wheeling’ to venues; including for a dinner, at a five-star hotel, which was a delicious vegan spread – and entirely free of charge;    
  • Priced at less than one-third the fee of a usual conference at €100 – and that’s for ‘participants receiving full institutional financial support’; otherwise, ‘please select the €0 fee option’;
  • Elevating and celebrating diverse body-minds-worlds whose research, creative and professional practice gather, collide and transcend disciplines, fields of knowledge, cultures, geopolitical borders, and specialisms and in the lineup. This includes shy*play, a pedagogical platform, collective, and art practice comprising teacher-researchers from Netherlands-Spain Antje Nestel and Aion Arribas, who invite us to ‘do neurodiversity’ (images 5a-5b); Estonian-UK PhD candidate Iris Sirendi discussing their Curating for Change curatorial fellowship at the Museum of Liverpool and urging – no, daring – the arts and cultural sector to step up and ‘crip the museum’ (image 6); US-Canadian-Polish feminist researcher and author of several books including Asexual Erotics Professor Ela Przybylo disclosing their new identity/positionality of being autistic, and inviting responses Towards a Neuroqueer Conference Manifesto/a/x.

The above are just a few of the highlights from the in-person session on 22 November 2024, which complements an online symposium with a different programme a week prior on 15 November 2024 for those who prefer the digital interface, both of which are recorded with transcripts which all participants can freely access. 

  • Guidelines for accessible events, compiled by Disability Arts Online, in-person and digital. A DAO activity I participated in had a brilliant captioner Marea O’Brien:  obriencaptioning@hotmail.com, and a fabulous BSL interpreter were Nikki Harris of Clifton Deaf Services office@cliftondeafservices.com
  • Make digital spaces accessible with provisions of live captioning, sign language interpretation, platform that anonymises responses: this set of guidelines by The Space is useful (scroll down for alternative modes).
  • More examples of better practices:
M) LEARN MORE: FURTHER TOOLKITS + GUIDELINES ON THE LEGAL DIMENSIONS

Companies, institutions and individuals I work with often ask me for magic pills. Unfortunately, for any culture change, we have to do the work, to learn, un-learn and re-learn. Just as we have to not just be not racist, but actively anti-racist, we can be actively anti-ableist, and actively more inclusive. There aren’t easy ready-made solutions that we can just cut and paste. Customisations are required for different individuals, communities and industries. There are plenty of resources out there to help get your thinking and action going!

AGAIN: This is a live document. It is not exhaustive. I will make changes to the document, as I learn more about (communicating) my requirements. It is in a public space, also so that colleagues are welcome to copy/adapt/customise what I have outlined (for instance, my advice on colour-coding may not work for those who do not read colours). While specific to my own needs, several points raised can prompt considerations to make work/life more accessible in general (and less fetishistic of normative approaches to the written language, how body-minds relate to one another, and so on), including for those whose third or fourth language is English, or who are time-poor due to jobs/caring responsibilities and do not have the luxury to dwell on 300 pages of linear/abstract arrangements of ideas. Collectively, we can make clear what have been dangerously missing structurally, and open more gates and minds.

TLDR: This clip by Sinbad (b1956 as David Adkins) on Gotham Comedy Live, New York, US 2015, sums it up.